Step Up for NF--2016

Saturday, June 4th will be NF Upper Midwest's sixth annual Step Up for NF fundraiser walk!  Step Up forNF helps us raise the funds necessary to continue our direct support of families experiencing NF, in addition to our advocacy work.  The walk is also a great oportunity to increase awareness of NF in our local communities.  

Neurofibromatosis (NF) is a genetic disorder of the nervous system which causes tumors to form on the nerves anywhere in the body at any time. Neurofibromatosis affects more than 100,000 Americans; this makes NF more prevalent than Cystic Fibrosis, hereditary Muscular Dystrophy, Huntington’s Disease and Tay Sachs combined. Yet, NF is less well-known by the public, making our efforts to increase awareness even more essential. NF Upper Midwest is a key player in providing advocacy and education for NF. NF Upper Midwest meets with our elected officials in Washington, helping to secure funding for research on NF. With your support, we are planning on strengthening our advocacy work in 2016, better leveraging our efforts to help find a cure for NF.

For our local NF community, we host informational forums on relevant topics, provide information and referral, sponsor kids to go to NF camp, award grants to attend NF related conferences, offer financial assistance to individuals or to family member with NF to assist with issues or emergencies related to NF, and lobby to ensure continued federal funding of NF related research.

Please join us in our efforts by making a donation to support families affected by neurofibromatosis!