1 P36 Deletion Support & Awareness

1p36 Deletion Syndrome (pronounced one P three six) is a genetic condition in which a small amount of genetic material is missing (deleted) at the tip of the short arm of chromosome 1. 1p36 Deletion Syndrome (also known as Monosomy 1p36) causes birth defects, minor changes in physical appearance and intellectual disabilities of varying degrees. 

The mission of 1p36 Deletion Support & Awareness is to help individuals affected by chromosome 1p36 abnormalities overcome the obstacles they face to be able to lead healthy, happy and productive lives. We do this by providing support and education to their families and increasing awareness of chromosome 1p36 abnormalities in the public and medical community.