ADNP Kids Research Foundation

RESEARCH IS AT THE HEART OF OUR MISSION

The ADNP-Kids Research Foundation (ADNP-KRF) is the first and only IRS accredited 501(c)3 non-profit organization in the world whose mission is to advance the awareness and treatment  of ADNP Syndrome (also known as Helsmoortel Van Der Aa Syndrome) through education and information, research and support for individuals with ADNP Syndrome, their families and others concerned parties. 

We are an all-volunteer orgaiznation of families and professionals dedicated to the funding of an aggressive resarch agenda (including a drug trial for CP201/NAP, research studies on speech, sleep and medications in ADNP children, facial recongition programs and motor planning disfuctions).  We are also hopeful to have the first ADNP focused US clinic by the end of 2017.

It is our goal to advance the scientific understanding of this rare syndrome so that effective treatments can be developed to improve the lives of these children that live with physical, developmental, neurological, and behavioral conditions. High-quality research can lead to more effective treatments, greater understanding of the disease, and an eventual cure for this disorder.

Your tax-deductible donation funds life-changing research and provides for education, advocacy and support for ADNP Syndrome. Please get involved and donate today!

To learn more about ADNP Syndrome please visit www.ADNPkids.com

To learn more about the ADNP Kids Research Foundation please visit www.ADNPfoundation.org