Beautiful You Mrkh Foundation - Bymrkh

We started the Beautiful You MRKH Foundation because we survived the devastating diagnosis of primary infertility that accompanies MRKH; fought hard battles with ourselves and others as we accepted our diagnoses and our infertility; and emerged as strong, determined, resilient and deeply caring women who understand and accept you just as you are–beautifully, perfectly, exquisitely you.

MRKH is a congenital condition that results in incomplete development of the female reproductive tract. Other terms for MRKH include Mullerian Agenesis and Vaginal Agenesis/Atresia. It occurs in approximately 1 in 4500 women. 

 Most women with MRKH have fully functional ovaries that can be located in unusual places in the body cavity. The primary symptoms are failure to menstruate. Typically, women with MRKH lack a fully functional uterus, cervix and upper vaginal canal. They have normal external genitalia and breast development. Although most women with MRKH are incapable of carrying children, it is possible to have biological children through the use of assisted reproductive therapies and gestational surrogacy.   

MRKH can also encompass other symptoms. The most common of these involve the kidneys. In some women with MRKH, their kidneys are abnormally formed or positioned in different places, and other women have a single kidney that can be positioned in various places throughout the abdominal cavity. Other symptoms include skeletal abnormalities (that usually are detected in the vertebrae), hearing loss and/or ringing in the ears (tinnitus) and heart defects.

The mission of the Beautiful You MRKH Foundation is to create a supportive community that partners with health care professionals to increase awareness and empower women of all ages with MRKH to feel beautiful, just as they are.

GOALS of the Beautiful You MRKH Foundation:

• Support Teens, Women and Families! We administer the MRKH Support and Awareness Facebook site, manage the sister-to-sister mentoring program and provide various types of support for all who are affected by MRKH.

• Advocate for MRKH! We will spread the word about MRKH throughout the medical community, open dialogues about MRKH with the media and work hard to eliminate the shame and isolation that often accompanies a diagnosis of MRKH.

• Become the place to go for medically accurate information about MRKH. As we develop our website, we will add scientifically accurate content (vetted through our Scientific Advisory Board) and links to medically accurate websites and publically available literature.

• Partner with physicians to improve the experience of all females with MRKH and provide funding to help defray the cost of medical treatment and counseling.  

• Fund research into the causes of MRKH, as well as the short-term and long-term emotional impact of MRKH on women and teens.

We ENVISION a world where:

• Physicians and their staff are knowledgeable and sensitive when diagnosing MRKH and treating women and teenagers with MRKH.

• MRKH is widely recognized and openly discussed within the medical field and within the general population. 

• Women worldwide will have a safe online community where they can meet others and share their triumphs and heartaches. 

• Reproductive opportunities are legal, safe and financially minimal.

It has been such a pleasure working together over the past year to launch this website. Although we started as strangers, we have become so much more than friends, and we hope that each of you will find a special place in our MRKH family.

PLUG IN with us on Social Media:

Facebook: https://www.facebook.com/pages/Beautiful-You-MRKH-Foundation/136594583180750?fref=ts

Twitter: https://twitter.com/BYMRKH 

Instagram: http://instagram.com/beautifulyoumrkh