Conquering CHD-Ohio

A nonprofit organization

$33,231 raised by 286 donors

100% complete

$10,000 Goal

At Conquering CHD - Ohio, we exist to conquer the most common birth defect. We engage, listen, learn, and act. We create visibility and empower all impacted by CHD. We accomplish this through awareness, knowledge, community, and research.

We exist to conquer the most common birth defect.

Congenital heart disease is the most common birth defect in the United States and worldwide. 1 in 100 people are diagnosed with CHD and nearly 40,000 babies will be born with CHD in the U.S. this year. Estimates suggest there are more adults living with CHD than children, upwards of 1.5 million.

We engage, listen, learn, and act. We create visibility and empower all impacted by CHD.

Our work fights for all congenital heart disease patients and their families, from prenatal diagnosis through adulthood and those families who have lost loved ones. Patients and families representing all states, races, ethnicities, ages, and with all types of CHD are part of our organization.

We accomplish this through awareness, community, knowledge, and research.

Beginning as a grassroots organization, we have built a robust network of collaborations – patients, family members, lawmakers, medical providers, scientists and media.

As patients and families ourselves, we know first-hand the importance of timely information in making decisions, support during difficult times, and the desire to spread as much awareness as possible. Our collective experience informs our evolving projects and enables us to connect with our broader community, responding quickly to the area of greatest need.

Conquering CHD serves as a beacon of hope for CHD patients and families and we invite you to join us in the fight against the most common birth defect. Together, we are #ConqueringCHD!

Through our State Chapters we are able to give knowledge, give a voice and give hope, directly meeting the comprehensive, lifelong needs of patients with congenital heart disease and their families through awareness, knowledge, community, and research programming.Local activities include:

  • Conquering CHD Kits offering critical information and a personal connection for patients with CHD of all ages through individualized care packages
  • Online chat networks bringing people with similar experiences together
  • In-person peer support offering patients and families encouragement and insight from someone who has walked a similar path
  • Social events providing a safe environment to celebrate life and simple joys together
  • Physician education improving understanding of congenital heart disease from the patient and family perspective
  • Research promotion and participation helping promising developments become reality
  • Advocacy activities sharing our stories to improve federal research funding

Organization Data

Summary

Organization name

Conquering CHD-Ohio

Tax id (EIN)

81-4872105

Address

8730 CINCINNATI DAYTON RD 337
WEST CHESTER, OH 45069