Your donation to DC Outreach provides hope and support to a community that often feels alone. Most of us had never met another person with this disease until we found DC Outreach. Dyskeratosis Congenita is so rare that we find ourselves to be the only DC patient in a room full of rare diseases.
In 2015, we have hopes of raising $10,000 to support patients and loved ones affected by DC and Telomere Biology Disorders. At present there is no cure and virtually no scientifically proven treatments for DC, in fact those who know we have it are considered lucky, as most cases go undiagnosed for years.
Dyskeratosis Congenita (DC) and Telomere Biology Disorders (TBD) are devastating, genetic diseases with severe, and often fatal, symptoms. They attack people of any age, but occur more frequently in children, resulting in an average mortality age of 16 though our community often suffers the loss of infants and young children. The disease manifests throughout the body and can cause bone marrow failure, pulmonary fibrosis, liver problems, susceptibility to various cancers, and a host of other serious issues. Its symptoms often masquerade as other illnesses, and because of its rarity, most doctors have never seen a case.
DC Outreach is focused on providing resources to all those affected by DC & TBD, raising awareness of the condition and sharing educational material with patients & physicians. Our efforts are all volunteer based and all money raised goes towards our outreach efforts. For more information, please see https://www.dcoutreach.org.
Thank you for your support. You're helping us bring much needed hope to all affected families!
Facebook Page- https://www.facebook.com/pages/Dyskeratosis-Congenita-Outreach-Inc/306708396035693
2015 Top Rated NonProfit- http://greatnonprofits.org/org/dyskeratosis-congenita-outreach-inc