Intermountain Pku and Allied Disorders Association

We are first and only organization in Utah and the Intermountain West dedicated to providing support, education, and services to individuals and families living with PKU.  We are an all volunteer organiation.

PKU is an inherited metabolic disorder that prohibits the body from properly processing the amino acid phenylalanine. Children born with PKU are diagnosed through the state newborn screening programs, which test all children born in the United States for PKU and many other disorders. PKU occurs in approximately 1 in every 10,000 births.

There is no cure for PKU. The treatment consists of a severely restricted diet that is low in protein and must be followed for life. People with PKU eat measured amounts of fruits, vegetables, specially manufactured low protein foods and a medical formula. Without treatment, PKU causes many neurological problems, including severe intellectual disabilities.

Our organization has provided many educational and social events to the local community, including: Family day at the Hogle Zoo; Insurance information meeting; Low protein pasta lunch at Buca Di Beppo; Utah-BYU basketball game social; Family day at the Dinosaur Discovery Site; Putt for PKU; Valentine’s Day Party; PKU Lunch and Learn low protein cooking class; Cook for Love low protein cooking class; Intermountain Regional PKU Conference; PKU Summer Camp for Kids; and PKU Night at the Museum. We also provide PKU starter kits to families of all Utah newborns diagnosed with PKU.

Your donations support these wonderful programs and help provide the support these families need!