PC Project - Pachyonychia Congenita Project

Pachyonychia Congenita (PC) is a ultra rare skin disorder characterized by painful calluses and blisters on the soles of the feet, thickened nails and cysts. PC Project was founded in 2004 to help those with PC be relieved from the pain caused by this disorder. 

PC Project is a 501(c)(3) public charirty that seeks treatments and a cure for this debilitating disorder through
(a) an international patient registry (IPCRR) which provides free physician consultations and genetic testing; and
(b) sponsorship of grants through the International PC Consortium (IPCC) which is a group of scientists and physicians dedicated to research to improve PC.

PC Project organizes a Patient Support Meeting each year in a different city around the world. These meetings allow PC patients, doctors, and scientists to come together to discuss PC. It's an opportunity for PC patients to meet with one another and doctors and scientists can learn from them which is unique for such a rare disorder. PC Project also sponsors an annual scientific meeting and has been awarded three grants (2005, 2009 and 2013) from the NIH due to the quality of these meetings.

Since 2004, incredible work and progress has been made. A formal FDA approved clinical trial has been completed and a second trial is underway. Please help PC patients all over the world by donating to this cause.