In Memory of Daniel B. Caplan, M.D.
Susan Burroughs, an adult CF patient and double lung/kidney recipient, founded the organization when she recognized a need amount CF patients to connect with other patients and families for support. In 1992, she began producing a newsletter called "Reaching Out".
As her own condition progressed and treatment became more costly while awaiting her lung transplant, she discovered that many patients and families were foregoing important elements of their treatment because they did not have adequate insurance coverage or could no longer afford co-payments. Watching friends lose their lives to CF, sh realized that there was a tremendous need to provide patients with access to care while the scientific community continues to work toward a cure.
Out of her efforts, Cystic Fibrosis-Reaching Out Foundation was founded in 1998 as an all-volunteer organization committed to providing direct assistance to CF patients and their families. The Foundation provides grants to centers specializing in the treatment of Cystic Fibrosis so that qualified social workers affiliated with the centers can direct support to families where it is most needed.
Emergency, Insurance, Nutritional Financial Assistance as well as Educational assistance for patients with cystic fibrosis.
Provided over $1,500,000 in financial assistance grants DIRECTLY to very sick patients with cystic fibrosis in times of crisis.