Xlh Network Inc

XLH is a rare, metabolic bone disorder that causes a variety of symptoms related to poor bone mineralization, including short stature, bowed legs and spontaneous dental abscesses.

The Network connects affected families around the world with knowledgeable clinicians, active researchers, and up-to-date information on diagnosis and treatment. 

The Network's role is growing with the recent discovery of the first-ever effective treatment for XLH, which is currently in clinicial trials. Now, more than ever, information on treatment needs to be made widely available to patients and their families and medical providers.