Help Sara support CLOVES Syndrome Community

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A nonprofit fundraiser supporting

Cloves Syndrome Community
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I'm riding with the CLOVES Riders for Research at the Million Dollar Bike Ride!

$1,800

raised by 12 people

$500 goal

I am raising money to support CLOVES Syndrome Community through the Million Dollar Bike Ride!


As a board member for CSC I am proud of all the ways we are able to directly help families and support research. As a parent I am grateful for the support community and knowledge base I have.


This organization means a lot to me and my family and I'd love if you could join me in supporting our efforts. 


CLOVES Syndrome stands for Congenital, Lipomatous, Overgrowth, Vascular Malformations, Epidermal Nevi and Spinal/Skeletal Anomalies and/or Scoliosis. CLOVES is caused by a somatic genetic mutation in a gene called PIK3CA that increases the activity of the gene. CLOVES belongs to a category of diseases known as PIK3CA-overgrowth spectrum or PROS.  There are limited treatment options and currently, no cure. 


All money raised by our team will go towards advancing and accelerating research and treatments for CLOVES and PROS.


For more information about CLOVES Syndrome Community visit https://clovessyndrome.org



This fundraiser supports

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Cloves Syndrome Community

Organized By Sara Robertson

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