Conquer Chiari with Team Tinkers

Family and friends this is a cause that is very near and dear to my heart. I am a zipper head! The support from all you helped to keep me going.  For years I suffered from this illness missing out and unable to do a lot. I was always sick, I always have headaches, my back pain grew worst, my vision became bad, I had numbness and tingly in my arms and legs, and all I wanted to do was sleep. Times when I wanted to be with friends I had to stay home because I just couldn't physically do it . It took my doctors years to figure out what was wrong or going on. It took one doctor that wouldn't give up and didn't say that I was making things in up, and didn't make feel like I was crazy for how I feeling  for it to be discovered. The day he told me I cried for days because surgery was the only way to fix it but it came with risk as usual or we can try to maintain it best we can with medications.  At 17 I had to decide if I wanted to have my brain cut open, and I was about to be a senior in high school. I decided to try medicine instead of surgery but the medicine was so strong that I was just down. I remember my mom having to pick me up from my friends house because I was feeling horrible and the nerves in my face were jumping from the medication I was on. I was so depressed and unhappy I was on all this medicine and I had no life  really, I was missing tones of school and I was on the verge of not graduating. I stopped doing my hair, stopped getting dressed and wore sweat pants everyday all day. I had lost all pride and confidence in myself. After my son was born things were even worst so I finally decided to get the surgery in 2011. The surgery gave me some relief ,enough relief to reclaim my life back. But I still suffer from certain things like limited mobility in my neck. I was blessed enough to have survived this and still be here to tell my story. Some others aren't.

This is an illness that still not many people are ware of but so many suffer such as myself suffer from. If you can please donate to this worth cause to help continue to bring awareness and research that can help save lives. #Iam a survivor