CLOVES Riders for Research

Steve, Loretta and I are raising money to support CLOVES Syndrome Community (CSC) through the Million Dollar Bike Ride...for our second year!  Each of us will be riding 13 miles over the next week.  

As a board member of CSC, I am proud of all the ways we are able to directly help families and support research.  We ride to support our niece and cousin, Riley, in hopes that ongoing research will help improve and strengthen the quality of her life as she lives with CLOVES.  

CLOVES Syndrome stands for Congenital, Lipomatous, Overgrowth, Vascular Malformations, Epidermal Nevi and Spinal/Skeletal Anomalies and/or Scoliosis. CLOVES is caused by a somatic genetic mutation in a gene called PIK3CA that increases the activity of the gene. CLOVES belongs to a category of diseases known as PIK3CA-overgrowth spectrum or PROS.  There are limited treatment options and currently, no cure. 

All money raised by our team will go towards advancing and accelerating research and treatments for CLOVES and PROS.

For more information about CLOVES Syndrome Community visit https://clovessyndrome.org..

Any donation is meaningful to our mighty community!  Much love and thanks!  

Ashley, Steve and Loretta