Remembering Caroline Rose - Support MCAP Research

Caroline Rose Mason was a beacon of light in each and every life she touched.   Her smile was infectious and her laughter contagious.  Simply being in the room with Caroline would brighten your day.

Caroline was born in November 2015, when she was diagnosed with a rare genetic disorder called Megalencephaly-Capillary Malformation Syndrome (commonly known as "MCAP" or "M-CM").   Her life with MCAP was challenging.  She had many extended stays at Childrens' Hospital of Atlanta, due to the disorder's effect on her brain.   Her schedule was full of appointments with specialists and therapists.   Things that come naturally to many children were often challenging for Caroline.

Nevertheless, Caroline lived life to the fullest.  She boated on the lake, swam at the beach, and traveled to the Rocky Mountains.  She rocked out to The Lumineers, spent hours bouncing in doorways, and enjoyed all the avocado she could get her hands on.  Caroline was happy, and you could always see it in her beautiful smile!

On January 23rd, 2019, complications from MCAP took their final toll.  Caroline passed away when pressure in her brain became too high to overcome.   In the face of devastation, her parents made the decision that she would become an organ donor.  Caroline's contribution to medicine and science means that she lives on, not only in our wonderful memories, but in the lives of other children and the research that makes our world a better place.

If you would like to join us in remembering Caroline, we ask that you consider donating to the M-CM Network.  This non-profit organization is dedicated to funding multiple research efforts and maintaining a growing database of patients who share Caroline's disorder.  Their efforts are helping doctors and scientists to better diagnose, understand, and treat the effects of MCAP and other genetic disorders.  Your donations are appreciated by many!