Revolutionize CLOVES Therapy!

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A nonprofit fundraiser supporting

Cloves Syndrome Community
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Support the CLOVES patient community by helping fund a premier advocacy group.

$519

raised by 7 people

$500 goal

I am a scientist and business leader working within the vascular anomaly research community.  As such, I recognize the tremendous value of Kristen's work as a patient advocate and really want to support her efforts.  This community of patients guides our path forward by helping us understand the life and challenges of those living with CLOVES.

There has never been a time of higher hope for a better future in the treatment of CLOVES.  Scientific advances in the understanding of the genetic root cause of CLOVES - mutations in the TEK and PIK3CA genes - have opened the way for developing precision medicines designed to target the mutation where it occurs.

I am pleased do to my part to support Kristen and the patients who live with CLOVES by the simple act of riding my bicycle.  Between June 6 through the 12th I will be bicycling a 34 mile route along the New England Seacoast.  Please consider donating $1/mile!

This fundraiser supports

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Cloves Syndrome Community

Organized By Thom Rossi

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