raised by 31 people
My amazing little niece, Stella Julie Dahlmann, was born with a rare genetic syndrome known as Macrocephaly-capillary malformation (M-CM). Many medical providers are unfamiliar with M-CM and affected children and their families face more questions than answers regarding the course of this condition.
M-CM Network provides comprehensive medical information about M-CM to aid in diagnosis and treatment decisions. Their goal is to establish a disease registry to collect data about affected individuals so that they can greatly expand the scope of what is known about M-CM. You can donate to help meet this goal.
I'll be running the New York Marathon on November 5 for Team Stella to help raise money and awareness for this great cause. Your generosity is greatly appreciated.
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Organized By Brad Clifton